1:26 The Art of Epilepsy in Boston

1:26 The Art of Epilepsy art exhibition was an inspiring event. We’re so grateful to the artists, guests, and sponsors who made this amazing event possible. Hear from the artists themselves about how they explore their experiences living with epilepsy in this video produced by Ingrid Pfau.

Join Hidden Truths Project and CURE for the 1:26 The Art of Epilepsy reception and art exhibit. This event honors Dr. Steven Schachter, Chief Academic Officer and Program Leader of Neurotechnology at the Consortia for Improving Medicine with Innovation & Technology (CIMIT) and Professor of Neurology at Harvard Medical School, as well as CURE Grantee Dr. Kevin Staley, Chief of Pediatric Neurology at Massachusetts General Hospital and the Joseph P. and Rose F. Kennedy Professor of Child Neurology and Mental Retardation, Harvard Medical School.

This will be an evening of inspired artwork created by artists, who span the globe linked by the common thread of epilepsy. The reception and art exhibition are being held at the newly renovated EpiCenter of Boston. At 1:26 The Art of Epilepsy, you will learn more about this nationwide art event, the fight against epilepsy stigma, and why epilepsy research is so critically needed in the quest for a cure.

The exhibit will focus on epilepsy-based art that reflects the seizure state, the psychosocial impact of living with epilepsy, and the technology involved in evaluating these individuals, including the multiple MRIs, EEGs and other diagnostic tests.

The goal of the night is to provide a platform for this diverse population of individuals to let their voices be heard and their stories told. Although each of these artists stories’ are unique, their works become a collective force to combat the injustices, discrimination, and marginalization directed against these individuals, many who continue to live in the shadows of this diagnosis.

Proceeds from 1:26 The Art of Epilepsy benefit CURE.

Tickets may be purchased in advance online or in-person on the day of the event. 1:26 The Art of Epilepsy is a 21+ event. The original art will be on display and available for sale the night of the event.

Make a weekend of it! 1:26 The Art of Epilepsy is happening the evening before CURE’s Day of Science event in Boston on Saturday, May 11. Learn more about this educational, community event and register.

A Mind Unraveled

A Mind Unraveled Book Signing in Corte Madera

Kurt Eichenwald is heading to Corte Madera to give a reading of A Mind Unraveled: A Memoir, the compelling story of his ongoing struggle with epilepsy, his torturous decision to keep his condition a secret to avoid discrimination, and his ensuing decades-long battle to not only survive, but to thrive.

In addition to reading a passage from A Mind Unraveled, Kurt Eichenwald will take questions and sign books. 50% of the royalties from the purchase of A Mind Unraveled benefit CURE.

“Eichenwald’s Story is breathtaking: devastation and inspiration all under one cover.”
Susan Axelrod, CURE Founder

Can’t make this reading? Eichenwald will also read and sign books at Mrs. Dalloway’s in Berkeley. Learn more here.

A Mind Unraveled

A Mind Unraveled Book Signing in Berkeley

Kurt Eichenwald is heading to Berkeley to give a reading of A Mind Unraveled: A Memoir, the compelling story of his ongoing struggle with epilepsy, his torturous decision to keep his condition a secret to avoid discrimination, and his ensuing decades-long battle to not only survive, but to thrive.

In addition to reading a passage from A Mind Unraveled, Kurt Eichenwald will take questions and sign books. 50% of the royalties from the purchase of A Mind Unraveled benefit CURE.

“Eichenwald’s Story is breathtaking: devastation and inspiration all under one cover.”
Susan Axelrod, CURE Founder

Reserve your seat by purchasing a copy of A Mind Unraveled by ordering through the Mrs. Dalloway’s website. or by speaking to a bookseller in-store.

Can’t make this reading? Eichenwald will also read and sign books at Book Passage in Corte Madera. Learn more here.

5K Strides for Epilepsy Run/Walk

The University of Maryland Eastern Shore School Of Pharmacy is hosting their 6th Annual 5K Strides for Epilepsy Run/Walk at the Salisbury Park on April 13, 2019.

5K Strides for Epilepsy is an event which raises awareness of the ongoing battle to find a cure for epilepsy. It provides students, faculty, and the community an opportunity to participate in an event which can help change the lives of those suffering from epilepsy.

All funds raised support CURE and United Needs & Abilities Inc. to fund cutting-edge research aiming to find a cure for epilepsy.

For questions or comments please contact Douglas Wienchedji at Dtwienchedji@umes.edu or 202-706-8281.

Ella's Race 2019

Ella’s Race

Join us for the 4th annual fun run/walk dedicated to Ella and everyone touched by epilepsy. This 2.6 mile fun run and 1 mile walk benefits Citizens United for Research in Epilepsy (CURE).

Suggested donation: $25 per person. You may register multiple people at once. Just list all registrant names and t-shirt sizes when you register.

Refreshments will be served following the walk/run.

Silent Auction will open at 9am and close at 11am.  There will also be a kids silent auction this year!

For questions about the run or sponsorship opportunities, please email Shalee Cunneen at smcunneen@gmail.com

Event Schedule

9:00 AM: Sign In/Silent Auction opens
9:45 AM: Opening Remarks
10:00 AM: Fun Run/Walk starts

Parking

Parking will be located at the American Nuclear Society at 555. N Kensington.  Street parking is available on Kensington and Ashland Avenues, as well as other neighborhood streets not on the race route.

Million Dollar Quartet

Meet star of HAMILTON Chicago Miguel Cervantes at the final performance of Million Dollar Quartet by Theatre at the Center in Munster, IN.

This thrilling musical invites audiences into the recording studio with Elvis Presley, Johnny Cash, Jerry Lee Lewis and Carl Perkins to see the true story of this amazing jam session. These four legends bring down the house with hits including “Blue Suede Shoes,” “Great Balls of Fire,” and “Walk the Line.”

Show Ticket (Required for Meet & Greet ticket purchase): $46
Meet & Greet with Miguel Cervantes, Including Photo/Autograph: $50 (limited spots available)

All Meet & Greet proceeds and $5 of every show ticket will benefit CURE.

Blo Wicker Park Grand Opening

Celebrate the grand opening of Blo Wicker Park and raise funds for cutting-edge research! Blo Wicker Park is offering specials starting Friday, March 8 through Sunday, March 31, including $29 blow outs (regularly $45) and $39 makeup applications (regularly $60).

$5 of every service provided during the grand opening week will benefit CURE and support our mission of finding a cure for epilepsy, by promoting and funding patient-focused research.

Join us for a special celebration on Thursday, March 14! The grand opening party is happening from 6-8 PM at the bar.

Charlestown Navy Yard

Day of Science in Boston

Day of Science is a free, town hall-style educational event for patients, families, medical professionals, researchers, and all those touched by or interested in learning more about epilepsy. Join us as clinicians answer your questions about cutting-edge research and epilepsy treatments.

Day of Science includes:

  • A panel of epilepsy experts discussing the latest in epilepsy research and what it means for patients and families.
  • Q&A sessions and small roundtable discussions with epilepsy experts over lunch
  • Information on cutting-edge therapies and treatments
  • The opportunity to engage with other families and advocacy groups in the epilepsy community
  • Breakfast options and lunch will be provided

What to Expect

Epilepsy Research: A Live Q&A – A moderated discussion by a panel of leading local clinicians and researchers who discuss audience questions about recent findings from epilepsy research.

You can submit your questions ahead of time using this form, and the panelists will do their best to address them.

We will also provide you with note cards during the event to write down any additional questions you may have for the panelists.

Lunch & Learn with the Experts – Further explore topics from the Q&A with panelists in a small-group setting.

After the panel discussion, CURE will provide lunch and you will be able to sit with panelists to ask questions and discuss the latest research in epilepsy, therapy, and treatments.

Make a weekend of it! Day of Science in Boston is happening the day after the 1:26 The Art of Epilepsy art exhibition on Friday, 5/10. Learn more about this event, featuring artists from around the world who are impacted by epilepsy.

FAQs

Can I register at the door?
Yes, you and your guests can register once you arrive at the event. CURE staff at the event will be happy to assist you.

Will meals be provided? 
YES! CURE will provide morning refreshments and lunch.

How can I contact the organizer with any questions? 
Please contact us at DOS@CUREepilepsy.org or 312-255-1801. If you need to contact the organizer on the day of the event, you must email DOS@CUREepilepsy.org.

Parking

Building # 199’s garage, located on 5th Ave. between, 16th and 13th Streets. Building 114 is located on 16th Street and 5th Ave on the Mystic River Channel.

Download parking garage map.

Map of Hospital Campus

Download printable map.

Directions to Massachusetts General Hospital, Building 114

16th Street and 5th Ave, Charlestown Navy Yard 02129

Public Transportation. Metro-Shuttle bus: Take the “T” (Green/Orange Line) to North Station and then board the MGH/Partners Shuttle bus. This white shuttle bus displays “CNY” on a placard on the bus windshield and runs weekdays every 15 minutes. It stops just across the street from the TD Bank Garden on Haverhill St (at the entrance to the MBTA Green/Orange line stop closest to Causeway St.)

Building #114 is the 3rd stop from the North Station and is located on 16th Street and 5th Ave. next to the Mystic River Channel.

In addition, Spaulding Hospital’s Express Shuttle (smaller white shuttle, displays “Spaulding Express” on the digital placard) runs weekdays, during the hours of 6am-9am and 3pm-6pm, every 10 minutes. This shuttle stops at North Station on Haverhill Street and runs directly to the Charlestown Navy Yard, stopping on 16th and 3rd Ave. Depart the shuttle and walk to 16th Street, turn left and walk 1/2 block to the corner of 16th Street and 5th Ave. to Building # 114.

From Storrow Drive East: At the end of Storrow Drive (just beyond the MGH Main Campus) take a left onto the McGrath-O’Brien Highway. The Museum of Science will be on your left. At the second set of traffic lights, go right onto the Gilmore Bridge, then at the next lights take a right onto Rutherford Avenue. Turn left at the second lights onto Chelsea Street. Proceed down Chelsea Street and take a right at the fourth set of lights onto 13th Street. Take the first left into the garage and park (located across from Building 149).  Building 114 is located on 16th Street and 5th Ave., to the left of the Navy Yard’s main parking garage, Building # 199.

From the Mass. Turnpike (90) and Route 93 North: Take Route 93 North (Storrow Drive) to Exit 26.  Stay in the left hand lane.  At the end of the ramp, turn left. Proceed straight through the first set of lights.  At the second set of lights, turn left onto Causeway Street.  Proceed down Causeway Street, passing the Fleet Center on the left.  Go left at the next set of lights – this will be Washington Street. Go over the bridge.  Take the first right after the bridge onto Chelsea Street. Proceed down Chelsea Street and take a right at the fourth set of lights onto 13th Street. Take the first left into the garage and park (located across from Building 149).  Building 114 is located on 16th Street and 5th Ave., to the left of the Navy Yard’s main parking garage, Building # 199.

From Route 93 South: Take Exit 28 (Charlestown/Sullivan Square). At the end of the exit where the road forks, stay to the left and merge onto Rutherford Avenue.  At the second set of lights take a left onto Chelsea Street.  Proceed down Chelsea Street and take a right at the fourth set of lights onto 13th Street.  Take the first left into the garage and park (located across from Building 149).  Building 114 is located on 16th Street and 5th Ave., to the left of the Navy Yard’s main parking garage, Building # 199.

From the Tobin Bridge – Route 1 South: Take Route 1 South over Tobin Bridge.  Go over bridge and take the first exit to the right towards Charlestown. Bear right at the lights- this will be Rutherford Ave.  Go right on Rutherford Ave and get into the left hand lane. Take a left onto Chelsea Street. Proceed down Chelsea Street and take a right at the fourth set of lights onto 13th Street.  Take the first left into the garage and park (located across from Building 149).  Building 114 is located on 16th Street and 5th Ave., to the left of the Navy Yard’s main parking garage, Building # 199.

The 2019 TCS New York City Marathon

Race to fund epilepsy research when you join Team CURE at the 2019 TCS New York City Marathon! Represent the 3.4 million Americans who are impacted by epilepsy at this iconic race through all 5 boroughs.

When you join Team CURE, you’ll receive:

  • Free race entry ($295 value)
  • Team CURE shirt
  • Personal fundraising page
  • Regular communications and motivational stories from CURE
  • Private, post-race social event

To register to race with Team CURE at the 2019 TCS New York City Marathon, send an email to Brandon Laughlin at events@www.cureepilepsy.org.

Looking for free training resources? TCS New York City Marathon has you covered! Head to their website and view their running resources.

HamilTunes: An American Singalong

Celebrate HAMILTON’s arrival to Dallas and support epilepsy research by joining us at HamilTunes! Perform on stage or sing along in the audience at this HamilFan-filled show.

Don’t throw away your shot to perform your favorite HAMILTON song among other HamilFans. Too shy to take center stage? Sing along with the rest of the audience from your seat!

Tickets to receive the song sign-up list are $10. This list will be sent ahead of the event. Otherwise, HamilTunes is free to attend.

Performance slots are limited, so be sure to purchase tickets in advance. Once the song sign-up live goes live, songs and characters will be first-come, first serve.

Singing will begin at 7:30 and run the length of the show, which is approximately 2.5 hours and includes a short intermission.