Nicholas & Jenni Pulos

“Walk With Me” Art Exhibition

Join the host of Bravo’s Flipping Out Jenni Pulos for Walk With Me, a solo art exhibition and cocktail reception featuring work by her nephew Nicholas Kontaxis.

This exclusive, one-night-only event, benefiting CURE, is happening at TAO Chicago on Saturday, November 24 from 7:00pm – 10:00pm.

Nicholas Kontaxis is an artist with epilepsy who creates beautifully captivating, large-scale abstract paintings characterized by a riot of primary colors. Though he has experienced more than 50,000 seizures in his lifetime, Nicholas continues to create stunning works.

At the cocktail reception, Jenni will speak about the impact epilepsy has had on their family.

Tickets are limited, so secure yours now.

1:26 The Art of Epilepsy

1:26 The Art of Epilepsy in San Francisco

1:26 The Art of EpilepsyJoin The Hidden Truths Project for the 1:26 The Art of Epilepsy art show and wine tasting. This event honors Dan Lowenstein, MD, for the vital work he does to help the epilepsy community.

This will be an evening of inspired artwork created by artists, who span the globe, linked by the common thread of epilepsy, as well as exquisite wine, courtesy of Bluxome Winery. At 1:26 The Art of Epilepsy, you will learn more about this nationwide art event, the fight against epilepsy stigma, and why epilepsy research is so critically needed in the quest for a cure.

The goal of the night is to provide a platform for this diverse population of individuals to let their voices be heard and their stories told. Although each of these artists stories’ are unique, their works become a collective force to combat the injustices, discrimination, and marginalization directed against these individuals, many who continue to live in the shadows of this diagnosis.

Proceeds from 1:26 The Art of Epilepsy benefit CURE.

The original art will be on display and available for sale the night of the event.

In partnership with

A special thank you to the Jerome Foundation, dedicated to the health and well-being of children, for their incredible donation in support of CURE’s mission to fund epilepsy research!

#MugsForAdelaide

#MugsForAdelaide Giveaway

Enter the #MugsForAdelaide giveaway for the chance to win two tickets to the Chicago production of HAMILTON, as well as a backstage tour with Miguel Cervantes!

Chicago businesses are serving Adelaide’s Blend during Epilepsy Awareness Month to spread awareness around the critical need for a cure. Fairgrounds Coffee created Adelaide’s Blend coffee to raise funds for epilepsy research. This coffee is named in honor of Adelaide Cervantes, daughter of HAMILTON Chicago star Miguel Cervantes and CURE board member Kelly Cervantes. Adelaide has infantile spasms, a rare and severe form of epilepsy.

To enter the giveaway:

  1. Head to a participating location during Epilepsy Awareness Month
  2. Snap a selfie while you’re there with Adelaide’s Blend.
  3. Post your selfie to Instagram with #MugsForAdelaide and mention where you found your cup of Adelaide’s Blend.

The contest is running during Epilepsy Awareness Month from November 1 – 30. Only 1 entry per Instagram account, no purchase necessary. Help spread epilepsy awareness while supporting critically needed research!

Participating Locations:

Aubergine by Purple Monkey
Bubbles Academy
Bucktown Music
Building Blocks Toy Store
Cocoon Care
enerGEEwhizz
Fairgrounds Coffee and Tea
Fresh Market, Bucktown
Goldfish Swim School
Havlan & West
KidCon
Lori K Sapio Photography
Little Beans Cafe

MommyCon
Morgan Mehalic Designs
NannyMomRhonda
Parent & Co.
Play Logan Square
Purple Monkey Playroom
Sara Leans Out
Sod Room
The Laboratory
Third Coast Birth
Virtu
Wishcraft Workshop

Miguel Cervantes

Photo Credit: Lori Sapio Photography

 

Epilepsy Awareness Day at Disneyland

Let’s paint Disneyland purple at the 6th Annual Epilepsy Awareness Day at Disneyland Resort! This family-friendly event on November 5-7 unites epilepsy patients, families, doctors, researchers, and organizations.

On November 5 and 6, join us at the expo where you can get access to epilepsy resources while learning about new treatment options and devices. Stop by the CURE photo booth and resources table, located near registration and the dog exhibit, to become an Epilepsy Superhero! We’ll have purple capes available for all kids fighting to defeat epilepsy stigma.

On November 7, head to Disneyland Park to enjoy the rides, build lasting friendships, and spread epilepsy awareness.

Come join over 2,000 highly-anticipating, ticketed participants as we converge into the Disneyland Park wearing our EADDL Purple Event T-Shirts.

Speaking of Seizures

Speaking of Seizures

Speaking of SeizuresArt and awareness meet to bring epilepsy out of the dark and into the street at The Bozeman Poetry Collective’s Speaking of Seizures poetry slam and fundraiser! Speaking of Seizures will feature poetry and informational talks about epilepsy and seizure first aid.

Poets and enthusiasts of all disciplines and levels of experience are welcome to enjoy this open, relaxed atmosphere and become inspired by a talented and diverse spectrum of local artists.

The Bozeman Poetry Collective believes strongly in fostering creative expression and culture in the Bozeman community and beyond.

Race for Epilepsy 2018

EVENT OVERVIEW

Race For Epilepsy, INC. is a non-profit organization to raise money and awareness for individuals with epilepsy. The organization holds a half marathon, 5k race, and fun walk on the last Saturday of every February.  All money received is donated to CURE. Race For Epilepsy, INC. primary goal is to educate the public and individuals with epilepsy, that depending on certain variables, individuals with epilepsy can have a job.

Race for Epilepsy is a USA Track & Field sanctioned event: Certificate #NC16046BW.

To register and learn more please visit www.raceforepilepsy.org.

About the organizer:

James P. Patterson III first started having seizures when he was 5 years old in 1985. As he got older his seizures became more frequent and more intense. At 17 years old, James was having an average of 25 seizures per day. It was then he decided to have brain surgery since his medication was having little to no effect on his epilepsy. In the summer of 1997 his left temporal lobe and hippocampus were removed. James has been seizure free since the surgery. His side effects from the surgery are: difficulties in expressive communication, weak vocabulary, and difficulties in recalling information (memory). After years of therapy, medication, and counseling, James has adapted to the issues.

While working on his bachelors at Appalachian State University, James started speaking publicly about his disability. He graduated from Appalachian in 2004 and immediately got a full-time job providing public service to the community that he still has at this day. Staying physically active (mostly running) has helped James handle the side effects due to epilepsy. James enjoys running half marathons, marathons, and ultras.

Get Your Shoes On – Fitt and Fashion for a CURE for Epilepsy

Please join us at FITT RX!

Kristin Rozmus will have you shaking your tail feather in support of epilepsy research! Childcare will be provided at FITT RX for your little ones at no additional cost.

The day does not end after your cool down. Please join us after our dance off and head over to MAXINE HANDBAGS & ACCESSORIES (122 N York) for an afternoon mimosa. Jennifer Blanchette has very generously offered to donate 15% of her sales on April 13, directly to CURE.

Suggested Donation: $20 per person

For questions about the dance off or sponsorship opportunities, please email Katie Eberspacher at rfeberspacher@gmail.com.
For more information or to make an online donation visit: http://cureep.convio.net/goto/olivia

 

Special thanks to FITT RX, Kristin Rozmus and Jennifer Blanchette for donating their time,space,love, and money, to such an important cause

3rd Annual Ella’s Race for a CURE

EVENT OVERVIEW

Join us for the 3rd annual fun run/walk dedicated to Ella and everyone touched by epilepsy.

5K Fun Run/Walk, 1 Mile Walk & Kids Dash
9:00 am – Sign In
9:30 am – Kids Dash
10:00 am – Fun Run/Walk starts

Suggested donation: $25 per person. T-shirts will be provided.

For questions about the run or sponsorship opportunities, please email Shalee Cunneen at smcunneen@gmail.com.

Day of Science 2017 – Boston, MA

EVENT OVERVIEW

Day of Science is a free, educational and networking opportunity for patients, families, medical professionals, researchers and all those touched by or interested in learning more about epilepsy. Day of Science includes:

  • Plenary and Q&A Session of medical experts
  • Opportunities for small group discussions with experts
  • Information on cutting-edge therapies and treatments
  • Opportunity to engage with others in epilepsy community
  • Access to local and national epilepsy resources

PANELISTS

MODERATOR

  • Annapurna Poduri, M.D., M.P.H., Boston Children’s Hospital

LOCAL EXPERTS

  • Bernard Chang, MD, MMSc, Beth Israel Deaconess Medical Center
  • Page Pennell, MD, Brigham and Women’s Hospital
  • Beth Sheidley, MS, CGC, Boston Children’s Hospital
  • Kevin Staley, MD, Massachusetts General Hospital

GUEST EXPERT

  • Anne Berg, PhD, Ann & Robert H. Lurie Children’s Hospital of Chicago

PLENARY AND Q&A TOPICS

THE FUTURE OF EPILEPSY

  • Comorbidities: The “other” fight in the battle against epilepsy
  • Genetic and Acquired Epilepsies: Advances in epilepsy research across the spectrum
  • Devices: Minimizing the invasiveness of epilepsy treatment
  • Impact of Epilepsy Research on the Family: From bench to bedside

VOLUNTEER INFO

Please contact the Day of Science team at DOS@CUREepilepsy.org or (312) 255-1801 if you are interested in volunteering at Day of Science. It’s a great opportunity for teens to earn service hours!

SPONSORSHIP INFO

Learn how you or your organization can sponsor Day of Science and bring the power of science to communities across the country!

Sunday Brunch Monthly Meetup

For details about this brunch, please request to join this Meetup.

This Meetup group is intended for those in Chicago who are affected by seizures/epilepsy directly or through someone in their lives. We also welcome those interested in learning more about it! 1 in 26 individuals will develop epilepsy in their lifetime. The purpose of the group is to bring young adults affected by seizures/epilepsy together to socialize, find support, learn more about each other’s experiences and to have FUN! This group meets the last Sunday of each month.