In the News

Sharp Waves ILAE Podcast
Consensus Recommendations for Epilepsy with Eyelid Myoclonia (Jeavons syndrome): Dr. Kelsey Smith

What are the most effective first-line medications for epilepsy with eyelid myoclonia, also known as Jeavons syndrome? Are there non-pharmacologic treatment options? Can people with this type of epilepsy drive safely? Dr. Alina Ivaniuk talks to the paper’s first author, Dr. Kelsey Smith, and discusses CURE Epilepsy’s impact on this research.




Released June 2024

What the Health Podcast
Spotlighting Epilepsy: Challenges & Prospects with Stephen Austin

CURE Epilepsy Board Member, Steve Austin, shares his epilepsy journey. This enlightening episode covers the epilepsy diagnosis, currently available treatment options, the promising advancements that could be coming in the future, and more.




Released April 2024

Understanding Epilepsy/ Nonprofit Report

CURE Epilepsy’s CEO, Beth Lewin Dean, joins three other nonprofit leaders within the epilepsy space, Roy Cherry, CEO of The Epilepsy Center of Northwest Ohio; & Ilene Penn Miller, Director of Rare Epilepsy Network and Director of Epilepsies Action Network.




Released November 2023

ABC7 Chicago

Tanja Babich sat down with Susan and David Axelrod to reflect on the journey that brought them and the organization Susan founded to this point.




Released May 2023

ABC7 Chicago
David and Susan Axelrod Share What Led Them to Create Epilepsy Non-profit

David and Susan Axelrod speak with ABC7 Chicago about their motivation to establish CURE Epilepsy in hopes of finding a cure for their daughter, Lauren, who experienced her first seizure in 1982.



Released May 2023

PIX11 News
Segement: Epilepsy Awareness Day

CURE Epilepsy CEO, Beth Lewin Dean, speaks with PIX11 News on Purple Day® about the importance of raising epilepsy awareness for the epilepsy community as we continue to search for a cure.



Released March 2023

Fox 11 Los Angeles
Segment: In Depth: Epilepsy

CURE Epilepsy’s Chief Scientific Officer, Dr. Laura Lubbers, speaks with Fox 11 Los Angeles on their segment aimed at raising awareness of epilepsy, Sudden Unexpected Death in Epilepsy (SUDEP), and infantile spasms. Additional guests on the segment include CURE Epilepsy community member Francesca Calloway, mother of a child with epilepsy, and an Associate Clinical Professor of Pediatrics at UCLA, Dr. Shaun Hussain.

Released March 2023

Charity Matters Podcast
Episode: CURE Epilepsy

CURE Epilepsy Founder, Susan Axelrod, appears as a guest on the Charity Matters podcast to discuss her journey as a parent to a child with epilepsy and how that experience lead to her, and other parents, creating CURE Epilepsy.



Released February 2023

Child Life on Call Podcast
Episode: Kelly’s Story — A Daughter with Epilepsy

CURE Epilepsy Boar Chair, Kelly Cervantes, appears on the Child Life on Call podcast to share how her family sought to empower themselves in the face of their daughter Adelaide’s epilepsy, her work with CURE Epilepsy, and much more.



Released January 2023

Morning Chava Podcast (previously known as Miraculous Mamas)
Episode: Infantile Spasms Awareness Week and Epilepsy Awareness with Kelly Cervantes

Board Chair and Seizing Life host, Kelly Cervantes, talks about what it’s like to be a miraculous mama.




Released December 2022

Childhood-Onset Epilepsy: A Look into the Effects of Aging

In hopes of learning more about how the brain changes due to aging in patients with childhood-onset epilepsy, a new study was funded that may suggest some interesting findings. So what do we need to know from the results of this study? To dive into this topic, Dr. Andrew Wilner is joined by Dr. Bruce Hermann, Emeritus Professor at the University of Wisconsin School of Medicine and Public Health, and Dr. Shlomo Shinnar, Professor Emeritus of Neurology and Pediatrics at Albert Einstein College of Medicine.


Released December 2022

NPR’s Podcast What’s Health Got to do With It
Episode: Curing Epilepsy; Mary Seacole, the Little-Known Founder of Modern Nursing

 CURE Epilepsy CEO, Beth Dean, along with community advocate and mom Nora Hennessy spoke with Dr. Joseph Sirven about epilepsy and living with epilepsy on NPR’s What’s Health Got to Do with It podcast.



Released November 2022

Globe Newswire
CURE’s Charity Auction Features Guitars Autographed by Rock & Roll Hall-of-Famers and Country Music Legends

An online charity auction, to fund epilepsy research, features autographed items and concert experiences donated by Rock & Roll Hall-of-Famers, country music legends, and musical theater stars.



Published October 2018

Citizens United for Research in Epilepsy (CURE) and Lundbeck Announce National Launch of Education Enrichment Fund

Citizens United for Research in Epilepsy (CURE) and Lundbeck  announced the launch of the CURE Education Enrichment Fund Scholarship Program, which is a one-time scholarship (up to $5,000) for people who are living with epilepsy, family members and caregivers.


Published December 2016

The New York Times
A Risk for Sudden Unexpected Death in Epilepsy that Often Goes Unmentioned

Sudden Unexpected Death in Epilepsy (SUDEP) was largely undiscussed between medical professionals, including neurologists, and thus patients were not warned of the dangers or what could put them at risk. It was not until CURE Epilepsy asked what was being done to address SUDEP that the federal government took action.  



Published August 2016