Ella’s Race to CURE Epilepsy

A proud member of the 2024 CURE Epilepsy Run/Walk Series

 

Run/Walk registration: A donation of $25 per runner/walker includes your walk T-shirt to wear that day!

Donate: Can’t attend but still want to help find a cure for epilepsy? Make a tax-deductible donation!

Event Details: On Sunday, June 2, 2024, Ella’s Race will have a 2.6 Mile Fun Run and a one-mile walk through La Grange Park to raise awareness and funds for epilepsy research! One in 26 people will develop epilepsy in their lifetime, and our 2.6-mile fun run route brings awareness to this fact. This is a family-friendly event, with music, snacks, and lots of smiles!

 

 

 

 

 

 

 

 

 

 

 

 

About Ella’s Race to CURE Epilepsy: First off, thank you for coming to visit our site! Our 14-year-old daughter Ella has severe epilepsy, and we’re raising money in her honor to help support research in epilepsy. Ella was first diagnosed with epilepsy days after her first birthday. Since that day we have tried approximately 20 different medications, special diets, prolonged hospital stays, surgical consults, second/third/fourth/etc. opinions all in hopes of bringing her seizures under control. Unfortunately, she still has frequent seizures that, when combined with all the medications she takes, have significantly slowed her development. Yet despite the seizures, meds, hospital stays, blood draws, and therapy appointments, Ella’s indelible spirit remains untouched. She continues to be our driving force, attacking each new challenge with a smile. You can learn more about Ella here.

Unfortunately, epilepsy’s reach extends far beyond just Ella, affecting over 3.4 million Americans, with 200,000 more cases being diagnosed each year. Approximately 50,000 deaths occur from seizures and seizure-related causes in the U.S. each year. CURE Epilepsy is the leading nongovernmental agency fully committed to funding research in epilepsy. CURE Epilepsy funds research grants for young and established investigators around the globe, and we believe these are the people who are going to be able to someday cure our Ella. Finding a new and novel treatment and changing technology is currently our only hope for Ella to become seizure-free. CURE Epilepsy is constantly at the forefront of the epilepsy research community, and they are also very fiscally responsible with all the contributions they receive. We are proud to be volunteers for CURE Epilepsy, and Shalee is also a Board Member for the organization. We are very passionate about this cause and believe CURE Epilepsy is the best agency out there to help us and Ella.

Join Team CURE Epilepsy for the 2024 Bank of America Chicago Marathon

All slots are currently full. If you wish to be added to the waitlist, contact Brandon Laughlin at Brandon.Laughlin@cureepilepsy.org.

 

Looking to challenge yourself and run 26.2 miles for the 1 in 26 Americans who live with epilepsy.  You can help raise awareness in epilepsy and help us raise critical funds for epilepsy research by joining Team CURE Epilepsy.  We are proud to be a partner of the 2024 Bank of America Chicago Marathon and have secured a limited number of charity spots for runners looking to explore our beautiful hometown neighborhoods, along an iconic 26.2-mile route.

As part of Team CURE Epilepsy, participants will receive:

  • Guaranteed entry into the 2024 Bank of America Chicago Marathon
  • Complimentary race entry ($240 value)*
    • *Registration fees are reimbursed if participant reaches the designated fundraising level
  • Personalized Team CURE Epilepsy online fundraising page
  • Team CURE Epilepsy performance shirt & participant swag bag
  • Coordinated long-distance training runs along the Chicago Lakefront with fellow Team CURE Epilepsy members – led by CURE Epilepsy staff member Brandon Laughlin
  • Team social prior to race day – includes dinner, networking, as well as last-minute tips from previous Team members
  • Family and friend participation in the Charity Cheer Zone along the course & post-race events
  • Encouragement through inspirational stories of those living with epilepsy and the latest research discoveries in epilepsy
  • Special recognition and prizes for top fundraisers

 

CURE Epilepsy is an inspiration with its bold vision to support transformative research in epilepsy. Dedicating a run to this great foundation, my patients and their loved ones, as well as raising awareness of epilepsy provide an awesome motivation for running 26.2 miles!” – Nigel Pederson, MD (CURE Epilepsy Grantee and 2022 Team CURE Epilepsy Participant)

Joey’s Song – Concert and Auction 2024

On January 6th, 2024, Joey’s Song Benefit Concert is going to be their biggest and most adventurous benefit concert to date!

There will be an auction (including an online auction open to both event attendees and non-attendees) with one-of-a-kind items including signed guitars from musicians such as R.E.M., Sheryl Crow, Noel Gallagher of Oasis, Eddie Vedder of Pearl Jam and more!

For more information on the benefit concert visit:
www.joeyssong.org

Reagan’s Run 2023

Hosted by Rea of Hope – Charity 5K and 1 Mile Fun Run benefits CURE Epilepsy

To honor Reagan and the 3.4 million people living with Epilepsy, Rea of Hope will host their second annual Regan’s Run.

The goal of this 5K and a 1-mile fun run is to raise awareness and funds for epilepsy research, with all proceeds going directly to CURE Epilepsy.

This is a family friendly event, with raffle table, snacks, and lots of smiles!

 

 

 

 

 

 

 

CURE Epilepsy CARES in Seattle

CURE Epilepsy CARES (Conversations About Research in Epilepsy & Seizures) is a free, educational event for patients, families, medical professionals, researchers, and all those touched by or interested in learning more about epilepsy. Join us as clinicians answer your questions about cutting-edge research and epilepsy treatments.

This Q&A event will be moderated by Dr. Rusty Novotny, Head of the Epilepsy Program at Seattle Children’s Hospital and Professor of Neurology and Pediatrics at UW School of Medicine.

 

CURE Epilepsy CARES includes:

  • A panel discussion with Q&A, featuring epilepsy experts, with topics and questions determined by the attendees. The panel will discuss the latest in epilepsy research and what it means for patients and families.
  • Lunch and Learn featuring intimate, roundtable discussions with epilepsy experts. A free boxed lunch will be provided.
  • An Epilepsy Resource Center including information about community resources for epilepsy, available treatment options, and clinical trial opportunities.
  • The opportunity to network and engage with other families and advocacy groups in the epilepsy community.

Topics of Conversation May Include:

  • New Epilepsy Treatment Options
  • Genetics and Precision Medicine
  • Drug-Resistant Epilepsy and Surgery
  • Anxiety and Depression in Epilepsy
  • Adult-onset Epilepsy and Women’s Health
  • ….and other topics related to advancements and research in epilepsy

Speakers:

  • Ghayda Mirzaa, MD

Assistant Professor of Pediatrics and Genetics

Seattle Children’s (University of Washington)

  • Michelle S. Kim, PhD

Neuropsychologist

Harborview Regional Epilepsy Center

  • Jason Scott Hauptman, MD, PhD

Interim Surgical Director of the Epilepsy Surgery Program; Co-Director of the TSC Program

Seattle Children’s

  • Stephanie Carapetian Randle, MD, MS

Director of TSC Clinic; Medical Director of Epilepsy Surgery

Seattle Children’s

  • Franck Kalume, PhD

Associate Professor of Neurological Surgery; Adjunct Associate Professor of Global Health and Pharmacology

Seattle Children’s (University of Washington)

  • Jan Ramirez, PhD

Director of the Center for Integrative Brain Research; Principal Investigator

Seattle Children’s

  • Michelle Guignet

Postdoctoral Scholar in UW School of Pharmacy

 

Location: Seattle Children’s Sand Point Learning Center, 5801 Sand Point Way Northeast, Seattle, WA 98105

Register

FAQs

Will meals be provided? 
YES! CURE Epilepsy will provide morning refreshments and lunch.

Can my guests register onsite?
YES! Staff will be available to register anyone onsite.

How can I contact the organizer with any questions?
Please contact us at events@CUREepilepsy.org or 312-255-1801. If you need to contact the organizer on the day of the event, you must email events@CUREepilepsy.org.

Marine Corps Marathon

CURE Epilepsy is proud to be a new partner of the 2023 Marine Corps Marathon. On October 29th, 2023, you can join fellow Team CURE Epilepsy runners in our nation’s capital as we raise critical funds and awareness in our efforts to find a cure for epilepsy, by promoting and funding patient-focused research.

As part of Team CURE Epilepsy, all persons who meet our fundraising requirements will receive:

  • Personalized Team CURE Epilepsy online fundraising page
  • Team CURE Epilepsy race kit with promo items
  • Invitation to race weekend activities and cheering fans along the course
  • Coaching and training plans via email
  • Prizes from fundraising challenges

10th Annual 5K Stride for Epilepsy

Registration for the 5K stride for Epilepsy is now open!  This year’s race will be held on UMES Campus at the New Pharmacy Building and it will take place on May 7, 2023.

Registration is $20. All proceeds from this event will benefit CURE Epilepsy and United Needs & Abilities (UNA).

2nd Annual Mansfield Walk to CURE Epilepsy

Welcome to our second annual Mansfield Walk to Cure Epilepsy, hosted by the Maffie Family. Our team name, “Ant’s Arrows”, was created to honor our son, brother, nephew, cousin, and dear friend who passed away on January 4, 2019 at the age of 22 from SUDEP (Sudden Unexpected Death in Epilepsy). Anthony was lovingly referred to as “Ant”. The arrows in our team name and part of our logo symbolize our efforts to move forward in our lives, while bringing Anthony and his motto “ expect nothing, appreciate everything “ with us. It is our hope those with this disease can also find the strength to move forward, as they confront the many daily challenges a diagnosis of epilepsy may bring.

Ella’s Race to CURE Epilepsy 2023

Run/Walk registration: A donation of $25 per runner/walker includes your walk T-shirt to wear that day!

Donate: Can’t attend but still want to help find a cure for epilepsy? Make a tax-deductible donation!

Event Details: On Sunday, June 4, 2023, Ella’s Race will have a 2.6 Mile Fun Run and a one-mile walk through La Grange Park to raise awareness and funds for epilepsy research! One in 26 people will develop epilepsy in their lifetime, and our 2.6-mile fun run route brings awareness to this fact. This is a family-friendly event, with music, snacks, and lots of smiles!

Ella, who is the inspiration for this race.

Join Team CURE Epilepsy for the 2023 TCS New York City Marathon

 

 

 

 

 

 

 

 

 

All available slots are currently filled. If more slots become available, we will update this page with registration information.

Race to fund epilepsy research when you join Team CURE Epilepsy at the 2023 TCS New York City Marathon! Represent the 3.4 million Americans who are impacted by epilepsy at this iconic race through all 5 boroughs. 

Team CURE Epilepsy members will receive:

  • Personalized Team CURE Epilepsy online fundraising page
  • Team CURE Epilepsy performance shirt & swag bag
  • Team social coordinated closer to the event
  • Family and friend participation in the Charity Cheer Zone along the course
  • Encouragement through inspirational stories and the latest research discoveries in epilepsy
  • Special recognition and prizes for top fundraisers

Looking for free training resources? TCS New York City Marathon has you covered! Head to their website and view their running resources.