Personal Stories

Calvin is my hero, my little muse, my inspiration and the one who makes me want to be a better person every day.

Calvin

Even though I have epilepsy and a learning disability. I have accomplished a lot of things throughout the years.

Abigail

We have come a long way in that there is a better understanding of epilepsy. With research, awareness, compassion and caring, epilepsy can become a thing of the past…or at least a cure of the future.

Keely

Hopefully one day there will be a cure and we will not have to live in constant fear of another seizure coming.

John

Living with epilepsy is not just a daily burden, but in fact an all- encompassing reality.

Linnea

According to my records, I’ve witnessed 18,737 seizures—a remarkable number even for a medical professional. But I’m not a doctor. I’m a mom.

Savannah

I wish I didn’t have to live with it. But I do, and I do it with the strength of knowing that someday I will find a way to conquer this.

Stephanie

A strong young boy keeps his spirits high as he battles epilepsy.

Ethan

A young lawyer's life is turned upside down by an epilepsy diagnosis.

Valda

Kaleb has taught us what it truly means to have unconditional faith, hope, and love.

Kaleb

Turning personal triumph into a mission for change—raising awareness, inspiring others, and running toward a future free from epilepsy

James

We understand the heartache and lives that are destroyed by epilepsy and while our daughter has been one of the lucky ones, there is a very scary reality that is constant in our minds.

Sophia

I have come to believe that unless you have experienced it yourself, or walked that path as a caregiver, parent, or significant other, it is very hard to comprehend the full impact of this disease.

Tracy

After years of struggling with epilepsy, brain surgery gives young man a new lease on life.

Michael's diagnosis and seizures changed his life in some ways, but it didn’t change his drive to give back and change the world.

Michael

Epilepsy ended up making Brook a stronger person and taught him to persist and work hard to achieve success.

Brook Hodgeman

Tired of battling epilepsy in the dark, Matthew advocates for awareness and seeks to become a neurologist.

Matthew Summerfield

A student who also has epilepsy inspires her teacher to pursue a career in healthcare.

Rachel Simms

Parents of children with epilepsy… never give up hope!

Britt

After years of serving his community as a police officer and battling seizures, Matt now serves his community in new ways.

Matt

A brave little girl's battle with infantile spasms.

Olivia

Sudden Unexpected Death In Epilepsy (SUDEP): No one told us.

Sharon

Her brain tumor and epilepsy have been the hardest experiences of her life, yet they have been the biggest blessings in disguise.

Devin

Derek plans to use his prior experiences to pursue a career as a physician assistant and a biomedical engineer.

Derek

Cote hopes to one day donate his time and use his legal knowledge and privileges to protect and provide services to families and foundations that want to cure epilepsy.

Cote

Epilepsy is the second most common neurological disease. For far too long, it has been misunderstood as a treatable, benign condition.

Lauren

Carol realized she needed to share her voice, advocate for those suffering, and show others it’s possible to live a productive life with epilepsy.

Lauren

Our lives changed forever that day, and we hope that there is a cure out there for Ella.

Ella

How the keto diet transformed a young boy's life and kickstarted a foundation.

Charlie

From a life-long battle with epilepsy to seizure freedom.

Jessica

It’s that face and that smile over all these years and through all the challenges that serve as our source of hope.

Eoin

We hope for seizure-free days and a life for our son without the side effects of treatments. We hope for a cure.

Adam

My heart shattered into a million pieces as I received the devastating news.

Chris

There were days where we could almost forget about epilepsy. Almost.

Bodie

It has been an incredible journey and test of faith, but we fight this disease with everything we’ve got.

CJ

I wish I could have protected him from SUDEP. I wish epilepsy had not taken him from me.

Mikey

“Cameron is a reminder that we study SUDEP because it has a real human toll. The people and families who suffer SUDEP are not just a statistic.”

Cameron

I often wonder what Pat’s recovery would have been like without PTE.

Pat

"Epilepsy takes a lot from you, but on the other hand it gives something to you."

Charles

One family's journey through heartbreak and hope, as they uncover the genetic mysteries behind their son's epilepsy, paving the way for future breakthroughs.

Isaiah

New parents and a brave little boy named Jack rally an entire community to uncover the mysteries of a rare genetic mutation.

Jack

As her parents, we make the absolute best of the times when she is healthy and happy, and we continue to hope for a cure.

Julie Walters

Michelle's ten-year journey through the world of epilepsy has motivated Michelle to become an advocate not just for her son, but also for others dealing with epilepsy.

Michelle

Loving his sister with epilepsy has made Daniel the person that he is today. He wants to make a difference in the epilepsy community until a cure is found.

Daniel

A sibling's battle with epilepsy inspires a career in research and pediatric neurology.

Daniel

Logan is determined to continue advocating for research in epilepsy and spreading epilepsy awareness.

Logan

Ever since my diagnosis, it has been my mission to spread epilepsy and SUDEP awareness—no matter where and what I am doing.

Sasha

Drake's mission and passion is to bring about substantive change in the world for people with epilepsy.

Drake

Jaqueline felt powerless in that moment, just like so many others do when confronted with seizures, and has since dedicated her life to understanding this disease.

Jacqueline

Since her brother’s diagnosis, Brianna has watched her family struggle with the financial and physical burdens of this disease.

Brianna

Like many people with epilepsy, for years Casey chose to keep her disease a secret.

Casey

As a child with epilepsy, he used to wander the halls of Texas Children’s Hospital and admire the doctors on their rounds.

Nolan

By the time he reached 4 1/2, he was seizing every two minutes and no medicine was working. In fact, he was on the maximum that an adult would be taking on two of the four medicines.

Johnathan

I found out at 23 that I have Epilepsy.

Melissa

I will never forget the night that my older brother, the boy whom I loved and looked up to, had his first seizure. He was 18, and it came out of nowhere.

Josh and Alexie

Little did I know that October 9, 2013 would be the day my life changed forever.

Tori

With the help of her family, she continued to grow professionally in the political arena and is currently pursuing a Master’s degree in Public Health.

Alison

A runner who competed in the 2021 NYC marathon for Team CURE Epilepsy.

Roi

A mother who struggled with not knowing the answer to her child’s epilepsy and who never gave up.

Jennifer

An individual smiling and holding a drink in a coffee shop setting.

Life took an unexpected turn as my best friend, the soul who filled my world with laughter and shared my deepest secrets, was diagnosed with epilepsy.

Anu

I’m now 25 years old, and I reflect on a journey that began with an epilepsy diagnosis at the age of 13.

Lauren

Sophie watched her little brother battle seizures daily and struggled to find a way to help him improve his quality of life.

Sophie

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Stories from the Epilepsy Community

Dive into inspiring and heartfelt personal stories from the epilepsy community. Explore the journeys of individuals who have navigated the challenges and triumphs of living with epilepsy firsthand.

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