Episode #92 - Epilepsy Stories and the Research Making a Difference featuring Patty & Patrick Horan, Dr. Pavel Klein, Lisa Maffie, Barbara Manley, Dr. Nuria Lacuey, Channing Seideman, Dr. Detlev Boison

Share
Subscribe

This week on Seizing Life we present short videos about three key areas of epilepsy research on which we focus: Post-Traumatic Epilepsy (PTE), Sudden Unexpected Death in Epilepsy (SUDEP), and Refractory (or Drug-Resistant) epilepsy. Each video tells the personal epilepsy story of a community member and offers information and insights from a CURE Epilepsy-funded researcher working in that area.

Our first story focuses on U.S. Army Captain Patrick Horan and his journey with Post-Traumatic Epilepsy (PTE) following a traumatic brain injury (TBI) that he suffered while serving in the Iraq War. Dr. Pavel Klein, Director of the Mid-Atlantic Epilepsy and Sleep Center, provides background on PTE and discusses the research he is currently conducting that may one day help prevent TBI from becoming PTE.

The second story highlights SUDEP. Though his seizures were well-controlled, Anthony Maffie passed away from SUDEP when he was only 22 years old. His mother and his aunt tell Anthony’s story, discuss what they wish they had known, and share how they keep his memory alive by raising funds for SUDEP research. Dr. Nuria Lacuey explains what we know about SUDEP, what can be done to mitigate risks, and what we hope to learn through research to help prevent SUDEP in the future.

Our final story focuses on Channing Seideman and her journey with refractory (or drug-resistant) epilepsy. Channing discusses how it impacts her day-to-day life, and why it’s important for her to support epilepsy research. Dr. Detlev Boison explains drug-resistant epilepsy and discusses the pre-clinical research study he is currently conducting with the goal of understanding how to block the enzyme that prevents the brain’s natural seizure-terminator, adenosine, from working properly.

Download Audio

Want to download this episode? Fill out the form below and enjoy the podcast any time you’d like!

    Back to Episode Download PDF

    Epilepsy Stories and the Research Making a Difference

    Related Episodes

    featured episode
    ResearchTypes of Epilepsy
    July 3, 2024

    #139 The NORSE Institute: A Mother’s Loss Drives Awareness and Research into a Devastating Form of Epilepsy

    Guest: Nora Wong

    After losing her son to a sudden and devastating form of epilepsy, Nora Wong founded the NORSE Institute to raise awareness and fund research.

    featured episode
    Living with EpilepsyTypes of Epilepsy
    December 27, 2023

    #132 Rare Epilepsy Organizations: Fostering Community and Advancing Research

    Guest: Dr. Justin West and Liz Ramirez

    This week on Seizing Life® we speak with two rare epilepsy organizations, The KCNT1 Epilepsy Foundation and The Cute Syndrome Foundation, about community, awareness, and advancing research.

    featured episode
    Infantile SpasmsResearch
    November 29, 2023

    #130 Infantile Spasms: The Facts, The Research, and The Hope for the Future

    Guest: Dr. Chris Dulla

    This week on Seizing Life® epilepsy researcher Dr. Chris Dulla provides information about infantile spasms, from detection and diagnosis to current research and future improvements in treatment.