Episode #85 - Addressing and Reducing Epilepsy-Related Deaths featuring Gardiner Lapham

Share
Subscribe

Discussing mortality in epilepsy can be a major source of discomfort for people living with epilepsy, their families, and caregivers. Consequently, providers sometimes avoid discussing the subject, and those with epilepsy and their loved ones are not given valuable information to help them make informed choices about care, wellness, and lifestyle. Additionally, epilepsy-related deaths are often not accounted for properly, making it difficult to establish accurate statistics around mortality in epilepsy. But we do have some data on the subject, and by educating physicians, patients, and families on the risks we can in turn help them reduce those risks, and allow for more open conversation, increased knowledge, further research, and better solutions for reducing the risk of epilepsy-related deaths. This is why PAME, or Partners Against Mortality in Epilepsy, was created.

Today on Seizing Life we welcome Gardiner Lapham back to the podcast. Gardiner is one of the co-founders of PAME, a collaboration of health care providers, researchers, scientists, public health officials, patient advocates, caregivers, bereaved families, and people living with epilepsy with the goal of improving our understanding of and working to prevent epilepsy-related mortality. Gardiner discusses the creation of PAME, its initiatives, and aims, and provides us with data and insights around epilepsy-related mortalities resulting from SUDEP (Sudden Unexpected Death in Epilepsy), suicide, accidents, and status epilepticus. It’s a difficult, but necessary conversation that needs to continue both within and outside the epilepsy community in order to better understand and, most importantly, reduce the risk of epilepsy-related deaths.

Download Audio

Want to download this episode? Fill out the form below and enjoy the podcast any time you’d like!

    Back to Episode Download PDF

    Addressing and Reducing Epilepsy-Related Deaths

    Related Episodes

    featured episode
    Living with Epilepsy
    June 5, 2024

    #138 The Sudden and Life-Altering Impact of Adult-Onset Epilepsy

    Guest: Jon Tuteur

    Jon Tuteur shares his journey with adult onset epilepsy. From his first seizure at age thirty, through his epilepsy diagnosis, treatment, and eventual brain surgery, Jon discuses the physical and emotional impacts of seizures, medications, diagnostic tests, and medical procedures in pursuit of seizure control.

    featured episode
    HealthcareLiving with Epilepsy
    May 1, 2024

    #137 Older Adults and Epilepsy: the Causes, the Signs, and the Treatments

    Guest: Dr. Rebecca O'Dwyer

    Dr. Laura O’Dwyer discusses the fastest growing segment of people living with epilepsy, adults over 65 years old. Dr. O’Dwyer provides an overview of the causes of epilepsy in older adults, the subtle signs to look for, and the importance of treatment.

    featured episode
    Living with Epilepsy
    April 3, 2024

    #136 One Woman’s Epilepsy Journey Through Childhood, Parenting, Discrimination, and Surgery

    Guest: Laura Beretsky

    This month on Seizing Life® author Laura Beretsky shares her decades-long journey with epilepsy chronicled in her recent memoir Seizing Control.