October 6, 2021 / Cindy and Elvin Angulo
For many people living with epilepsy, seizures are just one of the challenges. Often an epilepsy diagnosis comes with other medical issues. While rare, one such condition can be Sturge-Weber, a vascular disorder in which blood vessels in the brain form abnormally, resulting in a facial birthmark (referred to as a port-wine stain), eye abnormalities such as glaucoma, and often seizures
September 22, 2021 / Mary and Tom Nugent
This week on Seizing Life® we speak with Mary and Tom Nugent, parents of 3 young men, two of whom have grown-up with epilepsy. With one son severely impacted from infancy and another diagnosed at the age of 9, the Nugents have experienced the vastly different impacts of epilepsy in the microcosm of their own household.
September 1, 2021 / Dr. Charles Marcuccilli
In this rebroadcast of a Seizing Life episode from June 2019, we speak with Dr. Charles Marcuccilli, Director of Pediatric Epilepsy at the Rush University Medical Center. Dr. Marcuccilli explains why epilepsy is so misunderstood, discusses the history and impact of stigma around it, and suggests what patients, caregivers and healthcare professionals can do to increase awareness and education around epilepsy.
April 28, 2021 / Elissa Moore
When and how do you push back against medical professionals? Where do you go for information, and how do you access the best care for your child?
August 18, 2021 / Beth Dean
If you have listened to the Seizing Life podcast you know that it’s produced by CURE Epilepsy. But do you know what CURE Epilepsy, the organization, actually does? Are you aware of its mission and how it funds epilepsy research to help accelerate science and find a cure?
August 4, 2021 / Eva & Michelle Wadzinski, Caroline Pratt & Ashleigh Henrichs, Chrisin Godale
With students preparing to head back to college campuses, we revisit several previous episodes in which students with epilepsy and their parents discuss their experiences choosing and attending college.
July 21, 2021 / Dr. Steve White
Today on Seizing Life, we speak with epilepsy researcher, educator, and patient Dr. Steve White. Dr. White is a professor and Chair of the Department of Pharmacy at the University of Washington. He is also an epilepsy patient, having experienced his first seizure in 2010.
July 7, 2021 / Lissy Griffin
On this episode of Seizing Life, Lissy recounts her daughter’s onset, diagnosis and ACTH steroid treatment for infantile spasms. She also explains why early detection and treatment are so important, where to find infantile spasms support groups, and how awareness and education among parents, caregivers, and doctors can result in positive outcomes for infants with I.S.
June 23, 2021 / Jon Sadler
On this week’s Seizing Life, epilepsy patient, counselor, and author Jon Sadler discusses his 50-year journey living with epilepsy. Jon’s experiences reflect many of the challenges and concerns of people with epilepsy including stigma, employment, family, dealing with changing treatments and side-effects, and undergoing life-changing brain surgery.
