May 17, 2024 / Matt Perrone
This week on Seizing Life® we speak with Matt Perrone about his epilepsy onset and treatment journey, the impacts of seizures and medication on his mental health, and how his daughter’s diagnosis at the age of four spurred him to create EpiPalooza, a multi-band concert aimed at raising awareness and funds for epilepsy research.
May 3, 2023 / Lucretia Long
This week on Seizing Life® we welcome Lucretia Long to the podcast to discuss the present and future of epilepsy care and treatment. Lucretia is an Advanced Practice Registered Nurse (APRN) and a Certified Nurse Practitioner (CNP) at The Ohio State University Wexner Medical Center who has been working with epilepsy patients for over 30 years. She shares her vast experience and perspective on a range of areas within epilepsy care, treatment, and patient information.
May 3, 2023 / Reid and Ryan Rainwater
This week on Seizing Life® we speak with Reid Rainwater and his father Ryan about the sudden onset of epilepsy that Reid experienced as a freshman in high school, his journey to controlling tonic-clonic seizures, and how epilepsy and stigma have impacted his education and tennis career as one of the top young players in Oklahoma.
April 19, 2023 / Colleen Jendreas
This week on Seizing Life® mother and epilepsy advocate Collen Jendreas joins us to share her young son Owen’s epilepsy journey from initial onset to a diagnosis of Lenox Gastaut Syndrome (LGS), and discuss how two particular interventions have made a significant impact on Owen’s quality of life.
March 22, 2023 / Susan Axelrod and Barbara Kelly
This week on Seizing Life Susan Axelrod, CURE Epilepsy founder, and Barbara Kelly, the founding Research Chair, discuss the past, present, and future of the organization and epilepsy research.
March 8, 2023 / Carmen Zannier
This week on Seizing Life® Carmen Zannier shares her 35 year epilepsy journey, discusses her recent decision to go public with her diagnosis, and explains how her passion for mountain climbing has led her to raising funds for epilepsy research.
February 22, 2023 / Christiane, Christy, and Lawrence Tsane
This week on Seizing Life®, Christy and Lawrence Tsane share daughter Christiane’s epilepsy diagnosis and explain how they manage her seizures while nurturing her love of competitive running.
February 8, 2023 / Ara Carbonneau
This week on Seizing Life® Ara Carbonneau shares her difficult and remarkable decades-long journey to an epilepsy diagnosis. Years after recovering from meningitis as an infant, Ara began experiencing seizures as a teenager. Yet, she continued to pursue her dreams, attending college and graduate school, earning her teaching certificate and masters degree, getting published and building a career.
January 25, 2023 / Kristen Kotsimbos, Scott Strong, Gabriele Richardson, Ryan Chu
This week on Seizing Life® we take a look at diagnostic and surgical tools that assist physicians in localizing and removing areas of the brain that produce seizures. In an episode recorded this past November at Epilepsy Awareness Day at Disneyland, Kelly speaks with several exhibitors to learn more about current and emerging technology that is helping to improve the lives of those with epilepsy.
