October 23, 2020

SUDEP Action Day 2020

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Take the time to #SpeakUp2SaveLives.Speaking up can make the difference

Sudden Unexpected Death in Epilepsy (SUDEP) is one of the most devastating possible outcomes of epilepsy and occurs when a person with epilepsy passes away suddenly, for no known reason. Research indicates that 1 in 1,000 adults and children with epilepsy die from SUDEP each year1. This is why it’s critical that everyone speak up about SUDEP and epilepsy.

Today is SUDEP Action Day. Please join CURE Epilepsy in supporting this critically important day learning about SUDEP and by speaking up to save lives.

Below, please find information to watch, read, and share with everyone you can. Together, we can make a difference.

  • Participate in today’s webinar on Breathing & SUDEP, airing live at 1pm CT.
  • Listen to or watch this week’s episode of Seizing Life® with Libby Boyce and Jessica Brandes, two mothers who lost their sons much too soon to SUDEP.
  • Watch this message from Dr. Ann Poduri, a former CURE Epilepsy Grant recipient, and learn about the potential connection between Sudden Infant Death Syndrome (SIDS) and SUDEP.
  • Read our most recent CURE Epilepsy Discovery on the potential for epilepsy surgery to reduce SUDEP.
  • Share infographics on known SUDEP Risk Factors and Ways to Mitigate Risk with your family and friends on Facebook, Twitter, Instagram, and LinkedIn.

Speak up. Stay informed. Make a difference in someone’s life.

1Source: Sveinsson et al., 2017