June 16, 2023

Researcher Update: June 2023

In this Researcher Update you’ll find:


Letters of Intent for CURE Epilepsy’s Catalyst Award and Rare Epilepsy Partnership Award Due June 26

Letters of intent are due Monday, June 26.

The purpose of the Catalyst Award is to stimulate the discovery and development of new, transformative therapies for epilepsy, moving promising, well-supported preclinical and/or clinical research closer to clinical application. The award is intended to support the nimble development of data necessary to attract larger commercialization funding opportunities. Additional details including the timeline for submission are available in the full guidelines.

The purpose of the Rare Epilepsy Partnership Award is to advance research in rare epilepsies through the development of necessary research tools, techniques, model systems, and data collection platforms. Each award will be co-funded by CURE Epilepsy and one or more of the rare epilepsy advocacy groups (partners) identified for this cycle. Additional details including the submission timeline are available in the full guidelines.

Rare epilepsies focused on for this year’s Rare Epilepsy Partnership Award:

  • CHD2 related neurodevelopmental disorders
  • Cri du Chat Syndrome
  • New Onset Refractory Status Epilepticus (NORSE) and Febrile Infection-Related Epilepsy Syndrome (FIRES)
  • Ring Chromosome 14 Syndrome
  • SLC6A1 epileptic encephalopathy
  • SMC1A related developmental and epileptic disorders
  • SLC13A5 epilepsy

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Save the Date for PAME’s 2023 Conference

This year, our friends at PAME (Partners Against Mortality in Epilepsy) will hold their annual conference in Orlando, FL on Thursday, November 30. Be sure to say hello to CURE Epilepsy’s Board Chair and Seizing Life® podcast host, Kelly Cervantes, who will be speaking at the conference. The goals of this conference include critically evaluating risk factors and prevention strategies for mortality in epilepsy, networking with researchers, clinicians, people with epilepsy, families, and advocates alike, gaining advocacy skills, and more.

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Funding Opportunity Focused on Diversity, Equity, and Inclusion with Cures Within Reach

Cures Within Reach has released a Request for Proposals (RFP) for US-based clinical repurposing trials impacting Diversity, Equity, and Inclusion (DEI). Proposals are due Monday, June 26.

Budgets of up to $75,000 are accepted for clinical repurposing trials that are 1) led by any underrepresented Principal Investigator (PI) in any disease and/or 2) address health disparities among any underserved populations led by any PI.

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Preventing Epilepsy Deaths: Dissecting the New Mortality Toolkit Webinar with Danny Did Foundation

Join Danny Did Foundation on June 21 at 12 PM CT for this free 45-minute webinar to learn from epilepsy caregivers and an epilepsy clinician about a new website and toolkit for families and medical providers  intended to improve doctor-patient communication and reduce the risk of premature epilepsy mortality.