February 22, 2023

Researcher Update: February 2023

In this Researcher Update you’ll find information on:

Participation Requested in an Important Community Survey from CURE Epilepsy

As we celebrate our 25th anniversary this year, we are looking ahead to continued progress in finding cures for epilepsy. To make sure we are meeting your needs at this organizational milestone, we are conducting a community survey to inform our 5-year strategic planning process. We want to better understand your interests and needs, our organizational strengths and weaknesses, and how we can better serve and communicate with the broader epilepsy community. There are specific questions around the research that we fund where we need feedback from the epilepsy research community.

The anonymous survey takes about 15 minutes to complete, and participants who fill out the survey by March 2 will be entered into a drawing to win one of ten (10) $75 Visa gift cards as a thank-you for participating.

We appreciate you sharing your thoughts and helping ensure that CURE Epilepsy incorporates feedback from researchers and clinicians in the community.

If you have any difficulties accessing or completing the survey, please email dana.vielmetti@cureepilepsy.org.

Take Survey

Funding Opportunity for Neurotech Devices from The Center for Innovative NeuroTech Advancement (CINTA) and NeuroTech Harbor (NTH)

CINTA and NTH seek groundbreaking, collaborative projects to improve the diagnosis and treatment of disorders of the nervous system or their sequelae. The technologies proposed in applications must have a pathway to a prototype ready for first-in-human testing within four years. If successful, projects should be viable candidates for commercial development or have a viable and sustainable financial plan for rare disorders. Pre-proposals are being accepted until March 16, 2023.

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American Epilepsy Society (AES) Now Accepting Applications from Established Investigators for Three Funding Opportunities

Applications are being accepted through Thursday, March 23, 2023, for three funding mechanisms by AES to support established investigators working in basic, translational, and clinical research for epilepsy, seizures, and related disorders.

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Join Project Echo

The Epilepsy Foundation, Rare Epilepsy Network (REN), and the American Academy of Pediatrics (AAP) are launching an ECHO to increase the knowledge and skills of providers to effectively diagnose and treat rare or genetic epilepsy, Developmental & Epileptic Encephalopathies (DEEs), and epilepsy syndromes as well as their comorbidities. They are recruiting neurologists (pediatric and adult), epileptologists, trainees, pediatricians, and other health professionals to join this learning collaborative.

The ECHO will run March – June 2023 and will meet twice monthly at 1 pm CT/2 pm ET for 1-hour on alternating Wednesdays and Fridays for a total of nine sessions. To learn more, view the attached flyer here. For more information, please contact Alexis Katzenbach, ECHO Manager.

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NINDS-Sponsored Workshop on Status Epilepticus After Benzodiazepines: Seizures and Improving Long-Term Outcomes

Register now for this NINDS-sponsored workshop taking place from February 28-March 1. The recent approval of intramuscular midazolam (Seizalam®) for acute treatment of status epilepticus (SE) is an important advancement for the treatment of epilepsy. However, effective treatments that improve neuropathic outcomes after SE becomes refractory to benzodiazepines are a common unmet medical need. This virtual workshop will convene preclinical and clinical researchers, as well as other relevant stakeholders to discuss and define potential therapeutics needed to improve outcomes following SE.


National Workshop on Experimental Models of Post-Traumatic Epilepsy

Register now for this free workshop taking place both in-person at Texas A&M University and via Zoom on Friday, March 10. The Texas A&M Health Institute of Pharmacology and Neurotherapeutics (IPN) is hosting an AES-sponsored National Workshop on Experimental Models of Post-Traumatic Epilepsy (PTE). The IPN team invites you and your colleagues to learn the various facets of PTE research to discover and advance therapeutic agents for this form of epilepsy. The workshop will provide insights into animal models of PTE, laboratory protocols, biomarkers, and therapeutic interventions for traumatic brain injury-induced seizures and post-traumatic epileptogenesis.


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