February 8, 2018

February 2018 CEO Update

Greetings from snowy Chicago!

Over the past few months, I hope that you have noticed improved communications to our friends and supporters in the epilepsy community. We are working diligently to provide you with more updates and information. Starting this month, we will begin to provide an update from the CEO and a separate message from our Chief Scientific Officer, Dr. Laura Lubbers. We’ve heard from a number of you that Laura’s message last week was greatly appreciated.

My updates will address issues that are important to the epilepsy community. I’ll feature news about our operations and research resources that are freely available to you. With that in mind, I’m pleased to announce that CURE’s online webinar series is expanding to 10 or more topics this year. Encouraging advances in epilepsy research will be presented in non-technical terms. You’ll hear from highly-accomplished researchers and get a chance to “ask the expert.” All of our education events are funded by the generosity of CURE donors, so there is no charge to attend. Our next webinar, on March 8, will address how to deal with epilepsy’s impact on learning and performance at school. Register

A related announcement: More Scholarships! Once again, CURE will be offering scholarships up to $5,000 to people impacted by epilepsy. Learn More

Of course, I’ll also do my best to keep you informed about meaningful (and often fun) ways to support epilepsy research (like our HAMILTON fundraiser).

I’ve been serving in executive roles at non-profit organizations for over two decades. I joined CURE as CEO last July. If we haven’t yet had a chance to meet, I hope we’ll get that opportunity at an upcoming CURE event. Meanwhile, please send me a note if you have feedback or ideas on how to advance our shared mission.

Wishing you and your loved ones a great day,
Kate Carr



Featured Presenter: Madison Berl, PhD, ABPP, Neuropsychologist at Children’s National Hospital in Washington, D.C.

Date/Time: Thursday, March 8, 2018 / 1-2 PM CST

Summary: There are an estimated 470,000 young people under the age of 18 living with epilepsy in the United States and while many experience no adverse effects related to their learning or school performance, others may have cognitive issues related to their seizures, ranging from minor to severe. Several factors may contribute to these learning difficulties: seizure type and frequency, developmental disorders, medications, and psychosocial factors. This webinar is intended for the general public and will outline some of these cognitive-related issues that many young people with epilepsy experience, discuss the latest research on cognition and epilepsy, as well as identify some potential resources that may be available to individuals and their families.

CURE’s Leaders in Epilepsy Research Webinar Series provides cutting- edge information about new discoveries, research, and treatments in epilepsy. Researchers discuss the real-life challenges faced by the epilepsy community and potential resources to address their needs.