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CURE Update: Epilepsy & COVID-19 Resource Hub Now Live

May 7, 2020

Greetings, CURE community! The COVID-19 pandemic and our knowledge of the coronavirus continue to evolve. As more information hits headlines, we wanted to give you a way to stay up to date on how this situation is impacting the epilepsy community while providing helpful resources. On our new COVID-19 resource hub, you can find our guide on preparing for and getting the most out of virtual doctor visits, frequently asked questions, helpful podcast episodes, and more.

We will continue to monitor the impacts of COVID-19 but know that we remain laser-focused on finding a cure for epilepsy. We are in this for the long haul, and we are only able to continue this work because of the generosity of you, our supporters. Our funded research projects remain active, and we look forward to awarding new grants in the coming months. For a full update on the status of CURE’s research, please click here.

Below, please find additional resources and opportunities to support epilepsy research through participation, awareness, and education:

Be well,

Beth Lewin Dean

Beth Lewin Dean, CEO

Webinar: Learning Healthcare SystemsWebinar: Transforming Data into Seizure Control with Learning Healthcare Systems

Register

Doctors, researchers, patients, and families are collaborating to create a pediatric “learning healthcare system” in order to improve outcomes in children with epilepsy. In our webinar on Thursday, May 14 at 12:00PM CT, discover how this comprehensive, data-driven approach could lead to better guidelines, more consistent treatment, and increased seizure freedom for children.

Our Leaders in Epilepsy Research Webinar Series is made possible by the generous support of the BAND Foundation.

New 2020 Tax BenefitsDonate Now: Increased Tax Benefits in 2020

Learn More

The Coronavirus Aid Relief and Security Act (CARES Act) recently passed by Congress includes a new universal tax deduction for qualified charitable contributions in 2020. Individuals and corporations may now receive increased tax benefits when they support nonprofit organizations such as CURE, even if they claim the standard tax deduction. Your donations advance our mission and support the research we fund, and now your contribution may also lower your taxes. Please consider taking advantage of this win-win!

CURE DiscoveryCURE Discovery: “Big Data” Approach Identifies Protein that Protects Against Epileptogenesis

Learn More

Dr. Avtar Roopra and his team used a “big data” approach to understand how epilepsy develops following an initial “insult” to the brain. To do so, the team analyzed an astronomical amount of data to identify a protein called EZH2, which determines when thousands of genes are “turned on” or “turned off”. These findings suggest that this protein may protect the brain from seizures and epilepsy.

Seizing LifeNew from Seizing Life®, a CURE Podcast

Listen or Watch

Catch up on the latest episodes of the Seizing Life podcast where we discuss:

  • The role of NINDS in epilepsy research.
    Listen or Watch
  • How one family is managing medically complex healthcare during the COVID-19 pandemic.
    Listen or Watch
  • How comprehensive epilepsy care and public education has started to make a difference for the epilepsy community.
    Listen or Watch

NINDS SurveyNational Institute of Health (NIH) Survey on Healthcare Disparities – Participate Now

Take Survey

To address healthcare disparities and inequities among people with neurological conditions, NIH needs input from patients, caregivers, and family members like you! NIH hopes to use your input and perspective to close the gaps in neurological care, outcomes, treatment, access and provision of services, and research.