Genetics
Four leading children's research institutions are working together to evaluate genomic data, clinical data from patients, and scientific and medical expertise to accelerate discovery and therapeutic development.
Pediatric Epilepsy
Video telemedicine visits are a feasible and effective way to provide care for children and adolescents with psychogenic non-epileptic events.
Pediatric Epilepsy
Information obtained as part of routine clinical care can be collected in a prospective, standardized, efficient manner and be used to construct filterable, process/outcomes dashboards, updated in near time (36 hours).
Adherence of known people with epilepsy to anti-seizure medication treatment appeared to remain stable during lockdown in Germany. However, this study revealed findings which point to reduced care for newly diagnosed PWE.
Pediatric Epilepsy
From a developmental perspective, corpus callosotomy for drug-resistant epilepsy in early childhood is an effective treatment.
Ultra-high definition predictive brain tool seeks to give surgeons a sharp eye to spot epilepsy in a patient’s brain.
They showed in mice that low-frequency stimulation of specific brain areas could completely stop epileptic activity. Instead of using electric current, the researchers stimulated the cells with light.
CURE Epilepsy has signed on to a letter from a coalition led by the Tuberous Sclerosis Alliance that asks the National Governors Association to prioritize people with rare diseases, including rare epilepsies, and their caregivers for COVID-19 vaccine distribution.
CURE Epilepsy urges everyone to contact their respective representatives and senators to recommend passage of The RISE Act (H.R.869, S.289).
