# CURE Epilepsy: Promoting and funding patient\-focused research\.

> CURE Epilepsy is the leading nonprofit epilepsy research organization investing in unmet research needs that will lead to a cure\.

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## Pages
- [Homepage](https://www.cureepilepsy.org/)
- [SUDEP Impact](https://www.cureepilepsy.org/our-research/sudep-impact/)
- [CURE Epilepsy Champions](https://www.cureepilepsy.org/get-involved/cure-epilepsy-champions/)
- [Grant Programs and Opportunities](https://www.cureepilepsy.org/for-researchers/grants-program/)
- [Ways to Give](https://www.cureepilepsy.org/support-us/ways-to-give/)

## Venues
- [Bend, Oregon](https://www.cureepilepsy.org/venue/bend-oregon/)
- [Bend's Old Mill District West Parking Area](https://www.cureepilepsy.org/venue/bends-old-mill-district-west-parking-area-2/)
- [Casco, ME](https://www.cureepilepsy.org/venue/casco-me/)
- [Charlottesville, VA](https://www.cureepilepsy.org/venue/charlottesville-va/)
- [Sapphire Point Amenity Center](https://www.cureepilepsy.org/venue/sapphire-point-amenity-center/)

## Organizers
- [SeizureActionPlan\.org](https://www.cureepilepsy.org/organizer/seizureactionplan-org-2/)
- [Joanna Sophia Foundation](https://www.cureepilepsy.org/organizer/joanna-sophia-foundation/)
- [Push10](https://www.cureepilepsy.org/organizer/push10/)
- [SeizureActionPlan\.org](https://www.cureepilepsy.org/organizer/seizureactionplan-org/)

## Events
- [Bank of America Chicago Marathon 2026](https://www.cureepilepsy.org/event/chicago-marathon-2026/): Join Team CURE Epilepsy in the 2026 Chicago Marathon as we run for research in our fight for a cure\! Runners can reach new personal heights while raising critically\-needed funds for epilepsy research\.
- [CURE Epilepsy Takes Manhattan 2026](https://www.cureepilepsy.org/event/cure-epilepsy-takes-manhattan-3/): Join us for an intimate evening of music, laughter, backstage stories, and more\. More details to follow\.
- [CURE Epilepsy Takes Manhattan 2026](https://www.cureepilepsy.org/event/cure-epilepsy-takes-manhattan-3/): Join us for an intimate evening of music, laughter, backstage stories, and more\. More details to follow\.
- [Night of Discovery 2026](https://www.cureepilepsy.org/event/night-of-discovery/): CURE Epilepsy's annual Chicago benefit, Night of Discovery, will be held Saturday, September 19, 2026\. More details to follow\.
- [Jal Honolulu Marathon 2026](https://www.cureepilepsy.org/event/honolulu-marathon-2026/): Cheer on Team CURE Epilepsy at the 2026 Jal Honolulu Marathon\! 

## Podcast Series
- [One Family’s SUDEP story: A Tragic Loss Drives SUDEP Advocacy and Fundraising](https://www.cureepilepsy.org/seizing-life/one-familys-sudep-story-a-tragic-loss-drives-sudep-advocacy-and-fundraising/): In observance of Sudden Unexpected Death in Epilepsy \(SUDEP\) Action Day on October 16th, we speak with the Maffie family about the tragic loss of Anthony Maffie to SUDEP and their advocacy and fundraising efforts in Anthony’s honor\.
- [Epilepsy and Medical Trauma: Recognizing, Accepting, and Healing](https://www.cureepilepsy.org/seizing-life/epilepsy-and-medical-trauma-recognizing-accepting-and-healing/): Neuropsychologist Dr\. James Jackson discusses the concept of medical trauma and the often\-overlooked emotional toll of living with epilepsy on individuals and families\.
- [Subtle Seizures, Big Impact: A Young Woman’s Personal Epilepsy Journey](https://www.cureepilepsy.org/seizing-life/subtle-seizures-big-impact-a-young-womans-personal-epilepsy-journey/): Skylar Swatt shares her epilepsy journey, from a stroke that caused seizures shortly after her birth to the onset of “mini\-seizures” when she was a child which eventually resulted in a tonic clonic seizure and an epilepsy diagnosis in her teens\. Skylar details her treatment journey including an initial misdiagnosis of her seizures as muscle spasms and the mental health impacts of her diagnosis and epilepsy medications\.
- [Welcome to Seizing Life](https://www.cureepilepsy.org/seizing-life/welcome-to-seizing-life/): Welcome to Seizing Life, a CURE podcast\. Host and CURE Board Member Kelly Cervantes brings you inspirational and helpful stories about epilepsy, how it impacts lives, and the search for a cure\.
- [Married with Children\.\.\.with Epilepsy](https://www.cureepilepsy.org/seizing-life/married-with-children-with-epilepsy/): In this episode, Kelly sits down with her husband, star of Chicago’s HAMILTON Miguel Cervantes, to discuss how caring for their daughter Adelaide \(who has epilepsy\) has impacted their relationship\.

## Personal Stories
- [Van's Story](https://www.cureepilepsy.org/personal-stories/vans-story/): If you’re reading this particular story right now, you’re probably either a person with epilepsy or a caregiver of a person with epilepsy\.
- [Brittany's Story](https://www.cureepilepsy.org/personal-stories/brittneys-story-2/): I felt like I was limited in what I could and couldn’t do; I felt like I had to be watched all the time; and I really felt like a burden to many people\. 
- [Michele's Story](https://www.cureepilepsy.org/personal-stories/micheles-story/): I have struggled with epilepsy for 34 years\.
- [Dan's Story](https://www.cureepilepsy.org/personal-stories/dans-story/): I live life with my head held high\.
- [Susan's Story](https://www.cureepilepsy.org/personal-stories/susans-story-adult-seizures/): Matthew may never have a mom like other moms\. I hope that someday soon he will have a mom without seizures\.

## Research News
- [What Factors Might Account for the Increased Risk of Autism in Children with Epilepsy?](https://www.cureepilepsy.org/news/what-factors-might-account-for-the-increased-risk-of-autism-in-children-with-epilepsy/): A recent study examined factors associated with the co\-occurrence of autism and epilepsy in a large population\-based group\.
- [Epilepsy in Emerging Adulthood: Clinical, Psychosocial, and Surgical Challenges](https://www.cureepilepsy.org/news/epilepsy-in-emerging-adulthood-clinical-psychosocial-and-surgical-challenges/): Study finds that emerging adults with epilepsy represent a distinct patient population and may benefit from targeted interventions,
- [Listening Across Frequencies: Capturing Seizures of all Patients to Advance Antiseizure Medication Development\[](https://www.cureepilepsy.org/news/listening-across-frequencies-capturing-seizures-of-all-patients-to-advance-antiseizure-medication-development/): Commentary on epilepsy clinical trial design\.
- [Rural Living Linked to Worse Hospital Outcomes for People with Epilepsy](https://www.cureepilepsy.org/news/rural-living-linked-to-worse-hospital-outcomes-for-people-with-epilepsy/): A large study of more than 841,000 hospital admissions found that people with epilepsy living in the most rural U\.S\. counties experienced worse hospital outcomes than those living in the most urban areas\.
- [UK Epilepsy Prevalence and Incidence Update](https://www.cureepilepsy.org/news/uk-epilepsy-prevalence-and-incidence-update/): A new update on the number of new cases of epilepsy and the number of people with epilepsy in the UK has found differences between the nations\.

## Epilepsy Explained
- [Epileptologist Visits Explained](https://www.cureepilepsy.org/epilepsy-explained/epileptologist-visits-explained/): Dr\. Douglas Nordli, Pediatric Epileptologist at the University of Chicago Medicine, offers advice and insights on how to prepare for your epileptologist or neurologist appointments in order to get the most out of the time with your healthcare provider\.
- [Catamenial Epilepsy Explained](https://www.cureepilepsy.org/epilepsy-explained/catamenial-epilepsy-explained/): Dr\. Alexa King explains what every woman who experiences seizures needs to know about catamenial epilepsy\.
- [Seizure Phases Explained](https://www.cureepilepsy.org/epilepsy-explained/seizure-phases-explained/): Dr\. Kristen Park explains what happens before, during, and after a seizure in Seizure Phases Explained\.
- [Infantile Spasms Explained](https://www.cureepilepsy.org/epilepsy-explained/infantile-spasms-explained/): Dr\. Melanie McNally provides important information about recognizing infantile spasms in your baby and taking action as soon as possible for this medical emergency\.
- [Childhood Absence Epilepsy Explained](https://www.cureepilepsy.org/epilepsy-explained/chilhood-absence-epilepsy-explained/): Dr\. Zachary Grinspan, MD, MS, answers your questions about childhood absence epilepsy\.

## Team Bios
- [Greg Mayes, JD](https://www.cureepilepsy.org/about-cure-epilepsy/our-team/greg-mayes-jd/): President and Chief Executive Officer of Reunion Neuroscience Greg Mayes, JD is an accomplished leader with over 20 years in the pharmaceutical drug development space\.
- [Jean Saelens, CPA, MBA](https://www.cureepilepsy.org/about-cure-epilepsy/our-team/jean-saelens-cpa-mba/): Jean is a Finance and Accounting Executive with 30 years of progressively responsible business experience\.
- [Charles Marcuccilli, MD, PhD](https://www.cureepilepsy.org/about-cure-epilepsy/our-team/charles-marcuccilli-md-phd/)
- [Chris Dulla, PhD](https://www.cureepilepsy.org/about-cure-epilepsy/our-team/chris-dulla-phd/): Chris G\. Dulla, PhD, is the Annetta and Gustav Grisard Professor and Chair of the Department of Neuroscience at Tufts University School of Medicine, and Professor of Neurology at Tufts Medical Center\.
- [Annapurna Poduri, MD, MPH](https://www.cureepilepsy.org/about-cure-epilepsy/our-team/annapurna-poduri-md-mph/): In 2025, Dr\. Poduri returned to BCH to continue her research into the genetic causes of epilepsy, see patients with epilepsy and neurogenetic conditions, and to continue to mentor the next generation of physicians and scientists\.

## Discoveries
- [New Cause of Severe Childhood Epilepsy Found – Genetic Mutation in the CUX2 Gene](https://www.cureepilepsy.org/research-discoveries/new-cause-of-severe-childhood-epilepsy-found-genetic-mutation-in-the-cux2-gene/): These genetic mutations are very rare and therefore collaborative efforts with multiple patient populations make it more likely that a rare genetic mutation can be identified and studied\.
- [Harmonizing Epilepsy Research: Common Data Elements](https://www.cureepilepsy.org/research-discoveries/harmonizing-epilepsy-research-common-data-elements/): CDEs provide universal “sheet music” for epilepsy research, providing a standardized way of describing and collecting data\.
- [Transplanting Inhibitory Neurons Can Reduce Seizures](https://www.cureepilepsy.org/research-discoveries/transplanting-inhibitory-neurons-can-reduce-seizures/): An advantage of regenerative medicine is that the transplanted cells can potentially replace lost or damaged inhibitory neurons and also integrate into the existing brain circuitry\.
- [Serendipity in Science: New Uses for Old Drugs](https://www.cureepilepsy.org/research-discoveries/serendipity-in-science-new-uses-for-old-drugs/): Drug repurposing fast\-tracks treatments for epilepsy
- [Sorting Out SUDEP: Seeking The Causes, Finding Those At Risk](https://www.cureepilepsy.org/research-discoveries/sorting-out-sudep-seeking-the-causes-finding-those-at-risk/): To really move the needle on SUDEP research, we need to bridge two key topics: advancing our understanding of SUDEP risk through existing data and leveraging that knowledge to develop tools that help individuals and healthcare providers better understand and communicate risk\.

## Webinars
- [Pipeline of Progress: Epilepsy Medications on the Horizon](https://www.cureepilepsy.org/webinars/pipeline-of-progress-epilepsy-medications-on-the-horizon/): Dr\. Nathan Fountain reviews some of the epilepsy medications in phase III clinical trial as of April 2026\.
- [Epilepsy Service Dogs: The Science Behind the Sniff](https://www.cureepilepsy.org/webinars/epilepsy-service-dogs-the-science-behind-the-sniff/): Review of the two types of epilepsy service dogs \(seizure alert dogs and seizure rescue dogs\), why they can help people with epilepsy, and the process of getting one\.
- [Women’s Health: Complex Interactions of Epilepsy, Medications, and Hormones](https://www.cureepilepsy.org/webinars/womens-health-complex-interactions-of-epilepsy-medications-and-hormones/): How can epilepsy and anti\-seizure medications affect hormones and reproductive health? How do sex steroid hormones affect anti\-seizure medications and seizure control? Can the menopausal transition affect epilepsy? Get the answers to this and more\.
- [Epilepsy Emergencies and Current Rescue Medications](https://www.cureepilepsy.org/webinars/epilepsy-emergencies-and-current-rescue-medications/): When a seizure becomes an emergency, rescue medications provide immediate relief and help prevent the need for emergency care\.
- [Rescue Medication Delivery Methods and Future Therapies](https://www.cureepilepsy.org/webinars/rescue-medication-delivery-methods-and-future-therapies/): Rescue medications provide immediate relief and help prevent the need for emergency care\. While existing therapies do stop these epilepsy emergencies in many patients, some are still searching for an option that works for them\.

## Treatment Talks
- [Working With Your Doctor On Epilepsy Medication Access](https://www.cureepilepsy.org/treatment-talks/working_with_your_doctor_on_epilepsy_medication_access/): Working with your doctor to access new epilepsy drugs or switch to different anti\-seizure medications\.
- [Seizure Emergencies: Delivery Methods and Treatment Options](https://www.cureepilepsy.org/treatment-talks/seizure-emergencies-delivery-methods-and-treatment-options/): Seizure emergencies and the different delivery methods and treatment options for the current rescue medications\.
- [Diagnosis, Treatment, and Prognosis of Childhood Absence Epilepsy](https://www.cureepilepsy.org/treatment-talks/diagnosis-treatment-and-prognosis-of-childhood-absence-epilepsy/): This Treatment Talk will discuss the diagnosis, treatment, and prognosis of childhood absence epilepsy\.
- [Treatment of Focal Epilepsy: Advancement Toward Medical Remission](https://www.cureepilepsy.org/treatment-talks/treatment-of-focal-epilepsy-advancement-toward-medical-remission/): This Treatment Talk discusses focal epilepsy and the most recent treatments to help patients achieve medical remission\. 
- [Fenfluramine \- Treatment for Lennox\-Gastaut Syndrome \(LGS\)](https://www.cureepilepsy.org/treatment-talks/fenfluramine/): This Treatment Talk will focus on Lennox\-Gastaut Syndrome \(LGS\), a severe form of childhood epilepsy that arises during infancy or early childhood, and the use of the drug fenfluramine to treat patients diagnosed with LGS\.

## Grants Awarded
- [Understanding the Cardiac Basis of SUDEP in Alternating Hemiplegia of Childhood](https://www.cureepilepsy.org/grant_type/understanding-the-cardiac-basis-of-sudep-in-alternating-hemiplegia-of-childhood/): This project will identify which children are at highest risk and which medications are safest, with the goal of preventing sudden death and providing families and guiding clinical care of patients\.
- [Integrative AI\-driven Analysis of Genetic, Cardiac, Neurophysiological, and Sleep\-related Risk Factors for Personalized SUDEP Risk Prediction](https://www.cureepilepsy.org/grant_type/integrative-ai-driven-analysis-of-genetic-cardiac-neurophysiological-and-sleep-related-risk-factors-for-personalized-sudep-risk-prediction/): Using advanced artificial intelligence, this team aims to make advances that will facilitate the development of a personalized risk prediction tool that can estimate an individual’s SUDEP risk and clearly explain the reasons behind it\.
- [Identifying Clinical Biomarkers and Developing Multimodal Risk Prediction Tools for SUDEP Prevention](https://www.cureepilepsy.org/grant_type/identifying-clinical-biomarkers-and-developing-multimodal-risk-prediction-tools-for-sudep-prevention/): By analyzing patterns in heart rhythm, breathing, brain activity, arousal, and sleep, this project aims to uncover measurable warning signs of risk to inform prevention strategies\.
- [Efficacy Of Flupirtine To Treat Hypoxia\-Ischemia\-Induced Neonatal Seizures](https://www.cureepilepsy.org/grant_type/efficacy-of-flupirtine-to-treat-hypoxia-ischemia-induced-neonatal-seizures/): Dr\. Raol’s project will examine whether a potassium channel opener \(flupirtine\) can treat HI\-induced neonatal seizures and alter long\-term adverse neurological outcomes in an animal model of HI\. 
- [Acquired Interneuronopathy In A Mouse Model Of Infantile Spasms](https://www.cureepilepsy.org/grant_type/acquired-interneuronopathy-in-a-mouse-model-of-infantile-spasms/): Dr\. Nelson will explore the hypothesis that blocking normal activity causes a secondary change in interneurons, impairing cortical inhibition\. 

## Medications
- [Diazepam](https://www.cureepilepsy.org/understanding-epilepsy/treatments/epilepsy-medications/diazepam/)
- [Midazolam](https://www.cureepilepsy.org/understanding-epilepsy/treatments/epilepsy-medications/midazolam/)
- [Lorazepam](https://www.cureepilepsy.org/understanding-epilepsy/treatments/epilepsy-medications/lorazepam/)
- [Vigabatrin](https://www.cureepilepsy.org/understanding-epilepsy/treatments/epilepsy-medications/vigabatrin/)
- [Cannabidiol](https://www.cureepilepsy.org/understanding-epilepsy/treatments/epilepsy-medications/cannabidiol/)

## Event Categories
- [Awareness Events](https://www.cureepilepsy.org/events/category/awareness-events/)
- [CURE Epilepsy Champion Events](https://www.cureepilepsy.org/events/category/cure-epilepsy-champion-events/)
- [Run/Walk Series](https://www.cureepilepsy.org/events/category/run-walk-series/)
- [Team CURE Epilepsy Events](https://www.cureepilepsy.org/events/category/team-cure-epilepsy-events/)
- [For Researchers](https://www.cureepilepsy.org/events/category/for-researchers/)

## Topic
- [Pediatric Epilepsy](https://www.cureepilepsy.org/topic/pediatric-epilepsy/)
- [Genetics](https://www.cureepilepsy.org/topic/genetics/)
- [SUDEP](https://www.cureepilepsy.org/topic/sudep/)
- [Mechanisms](https://www.cureepilepsy.org/topic/mechanisms/)
- [Treatment](https://www.cureepilepsy.org/topic/treatment/)

## Story Topics
- [Adult with Epilepsy](https://www.cureepilepsy.org/story_topics/adult-with-epilepsy/)
- [Rare Epilepsies](https://www.cureepilepsy.org/story_topics/rare-epilepsies/)
- [Child with Epilepsy](https://www.cureepilepsy.org/story_topics/child-with-epilepsy/)
- [Surgery](https://www.cureepilepsy.org/story_topics/surgery/)
- [SUDEP](https://www.cureepilepsy.org/story_topics/sudep/)

## Podcast Topics
- [Living With Epilepsy](https://www.cureepilepsy.org/podcast_topics/living-with-epilepsy/)
- [Research](https://www.cureepilepsy.org/podcast_topics/research/)
- [Parent/Caregiver](https://www.cureepilepsy.org/podcast_topics/parent-caregiver/)
- [Child](https://www.cureepilepsy.org/podcast_topics/child/)
- [Adult](https://www.cureepilepsy.org/podcast_topics/adult/)

## Optional
- [Sitemap index](https://www.cureepilepsy.org/sitemap_index.xml)