CURE - Citizens United for Research in Epilepsy It's Time We Found a CURE CURE Epilepsy Research

By FRED VOGELSTEIN

Published: November 17, 2010

Once every three or four months my son, Sam, grabs a cookie or a piece of candy and, wide-eyed, holds it inches from his mouth, ready to devour it. He knows he’s not allowed to eat these The Vogelsteinsthings, but like any 9-year-old, he hopes that somehow, this once, my wife, Evelyn, or I will make an exception.

We never make exceptions when it comes to Sam and food, though, which means that when temptation takes hold of Sam and he is denied, things can get pretty hairy. Confronted with a gingerbread house at a friend’s party last December, he went scorched earth, grabbing parts of the structure and smashing it to bits. Reason rarely works. Usually one of us has to pry the food out of his hands. Sometimes he ends up in tears.

It’s not just cookies and candy that we forbid Sam to eat. Cake, ice cream, pizza, tortilla chips and soda aren’t allowed, either. Macaroni and cheese used to be his favorite food, but he told Evelyn the other day that he couldn’t remember what it tastes like anymore. At Halloween we let him collect candy, but he trades it in for a present. At birthday parties and play dates, he brings a lunchbox to eat from.

Read the entire article >

Join Fred Vogelstein and Evelyn Nussenbaum at the 2nd annual CURE San Francisco Benefit on April 17th! For tickets and information: Click Here

 

 

CURE For questions, please contact the CURE office, 312.255.1801, or email info@cureepilepsy.org.

CURE Epilepsy
Related:     Take Action  
Andrew's Story

Andrew's Story

Read More

Chris's Story

Chris's Story

Read More

Rebecca's Story

Rebecca's Story

Read More

CURE epilepsy
Donate

Every Dollar Counts

Donate

So Many Ways You Can Help

 


Roll Call
See Roll Callís article about the increase in epilepsy in returning troops and the recent Department of Defense Appropriations.
Click Here >

CURE is driven
Grant Recipients