CURE Board Member Featured in Science Magazine; CURE Announces New SUDEP Award

CHICAGO, IL –– Friday, July 11, 2008 —Citizens United for Research in Epilepsy (CURE) announced the establishment of a new epilepsy research program focused on Sudden Unexplained Death in Epilepsy (SUDEP).

Every year, it is estimated that up to 50,000 deaths occur in the United States from seizure-related causes including SUDEP. There is an urgent need for more research to determine underlying mechanisms and causes of SUDEP so that the risk may be minimized and eventually eliminated.

In its decade-long history, CURE has funded multiple researchers studying SUDEP. However, this year marks the start of the first SUDEP targeted research program. This program will award seed grants to researchers submitting innovative proposals that will provide new directions for SUDEP research.

This award is being established and named to honor the memory of Christopher Donalty (October 27, 1980–February 21, 2002) and Kyle Coggins (December 15, 1981–May 13, 2003), who died from SUDEP.

Christopher’s mother and CURE Board member Jeanne Donalty was featured in the July 4, 2008 Science magazine article, “When Death Strikes Without Warning,” where she sheds essential light on the devastating effects of SUDEP and the need for increased awareness. The article discusses the historical lack of SUDEP research, and how grieving families like the Donaltys have helped drive a recent increase in both discussion and study of the problem.

Read the Science magazine article, “When Death Strikes Without Warning.”

Visit www.CUREepilepsy.org/research/detail_donalty_coggins.asp for more information about CURE’s new SUDEP award and to submit a Letter of Intent.

Visit www.CUREepilepsy.org/psas/jeanne.asp for Jeanne’s video and story.

Visit www.CUREepilepsy.org/downloads/SUDEP.pdf for more information about SUDEP.