CURE - Citizens United for Research in Epilepsy It's Time We Found a CURE CURE Epilepsy Research

American Epilepsy Society
342 North Main Street
West Hartford, CT 06117
(860) 586-7505

For funding for epilepsy research, go to:

Epilepsy Journals from The Lancet

Epilepsy Phenome/Genome Project
EPGP is an NINDS study looking for siblings who both have epilepsy, and people who have other specific types of epilepsy.

Institute of Medicines

CURE Epilepsy

National Institute of Neurological Disorders and Stroke
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
(301) 496-5751

RE (Rasmussen's encephalitis) Children’s Project

Suite 350, 283 Danforth Avenue
Toronto, Ontario M4K 1N2
Tel: (416) 556-8770


Other Resources

Alternating Hemiplegia of Childhood (AHC) Foundation

Calvin's Story

Coping With Epilepsy

Centers for Disease Control & Prevention

Dravet Foundation
PO Box 66599
Baltimore MD 21236

Epilepsy Therapy Development Project

Epilepsy Foundation
For Spanish speakers, call

Hope for Hypothalamic Hamartomas

Ice Epilepsy Alliance

International Bureau for Epilepsy

International League Against Epilepsy

Lennox-Gestaut Syndrome (LGS) Foundation

CURE Epilepsy

Living Well With Epilepsy

Long QT Syndrome

Matthews Friends
The Ketogenic Diet

P.O. Box 191
Surrey RH8 0WL
011-44-788 405811

My Epilepsy Story

My Seizures Know More

Talk About It

The Anita Kaufmann Foundation
(201) 655.0420

The Charlie Foundation
1223 Wilshire Blvd.
Suite #815
Santa Monica, CA 90403
(800) FOR-KETO (367-5386)

The Matty Fund
(401) 789-7330

Understanding Infantile Spasms (IS)


CURE | Citizens United for Research in Epilepsy is providing these epilepsy-related materials as informational and educational resources. CURE does not warrant, and hereby disclaims, the accuracy, completeness, or timeliness of any information contained in these materials. CURE does not, in any manner, endorse, recommend or guarantee the individuals or companies that have authored these materials, the services they provide or the availability of such services. In no event shall CURE be liable for any information included in or omitted from any resource, or for any decision made or action taken by you in reliance on such information.


CURE For questions, please contact Julie Milder at the CURE office, 312.255.1801, or email

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